Category "Home Ventilator Child"

Modern technology has improved the quality of life for children with a tracheostomy and home ventilators. An increasing number of technology-dependent patients are sent home for long-term home-management of stable chronic illness. Patient education for the caregivers should begin early and include basic airway anatomy, signs and symptoms of respiratory distress, care and maintenance of a tracheostomy as well as emergency procedures. Caring for children with tracheostomy’s can be challenging at first but with proper education and support from qualified personnel, the process becomes easier over time.

To learn more about caring for a child with a tracheostomy visit the link below.

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Spinal Muscle Atrophy (SMA) is a genetic neuromuscular disease. It’s the number 1 genetic cause of infant death and as many as 1in 10,000 live births may be affected. SMA can affect people of any race or gender and survivors require lifelong care and support. About 68% of children with SMA type 1 will die before their 2nd birthday and 82% die after their 4th  however survival  in these infants is improving with improvements in Respiratory and Nutritional care.

Respiratory muscle weakness is a significant problem for children with SMA. Respiratory care interventions such as caregiver education, Non-Invasive Respiratory Management and Negative Pressure Ventilation are essential to the survival and comfort of children with SMA.

To learn more about SMA and how Respiratory Therapy benefits these patients visit this link.

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The goal for patients living with a ventilator is to live a full life, and, if not to return to spontaneous breathing, then to live well with ventilator support. Ventilator types, daily activities, complications and caregiver support can have a positive effect on patient experience. Many patients cope well with a ventilator, and manage exceptional independence during treatment.

Caring for a patient on mechanical ventilation requires teamwork, knowledge of care goals, and interventions based on patient needs, best practices and response to therapy. Mechanical ventilation has become a common treatment for children and caregivers must be knowledgeable and confident when caring for ventilator patients.

To learn more about caring for a ventilated child click the resource link below.

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